EUHealth policy
European rare disease conference in Prague calls for a joint EU action plan
A statement by a ministry, institution or international organisation, or a change in regulations. It is not evidence about how well a treatment works.
The 13th European Conference on Rare Diseases and Orphan Products (ECRD), held in Prague on June 3–4, 2026, came together in calling for a coordinated EU-wide action plan. Newborn screening, the European Reference Networks and mental health were among the main topics. It was reported at the meeting that about seven in ten patients say their mental health is poor.
What does it mean for patients and families?
Policy work on rare disease services in Europe is speeding up. The aim is for these services to become better coordinated.
Source
EURORDIS: Highlights from Prague: ECRD 2026 sets the course for coordinated action
The source page was opened and read on October 7, 2026. Summary prepared by the Doktorclub editorial team and translated from Turkish; it has not yet been reviewed by a physician (a scientific board is being set up).
This page is translated from the Turkish original.
This page reports a development; it is not a treatment recommendation. Your doctor decides whether a treatment is right for you.