Rare Diseases
New treatments, research and health policy from around the world and from Türkiye. Each with its source and level of evidence.
4 updates
TürkiyeHealth policy
Prof. Dr. Hacer Durmuş Tekçe of the Turkish Neurological Society said that at least 5 million people in Türkiye are affected by rare diseases and that diagnosis can be delayed by 5–8 years.
TürkiyeHealth policy
Health Minister Kemal Memişoğlu announced that the synthesis of the active ingredient nusinersen has been completed.
TürkiyeHealth policy
The Takayasu working group of the Turkish Society for Rheumatology published the first national recommendations.
TürkiyeHealth policy
The Ministry of Health will increase the number of treatment and research centers for rare diseases.