Heart and blood vessel diseases

Bundgaard syndrome

An inherited heart rhythm disorder; very few cases have been reported worldwide.

Not part of the panel of Türkiye's National Newborn Screening Programme (heel-prick test). Source

Disease profile in preparation. A detailed profile covering symptoms, diagnosis, treatment and daily life will be published after review by our medical board. The short description above is for general information and has not yet been reviewed by a physician.

This page is translated from the Turkish original.

This disease is followed through the “Heart and blood vessel diseases” group.

You are not alone: patient associations in Türkiye

Non-profit patient and family organizations in Türkiye working on this disease or disease group. Links are for information; Doktorclub is not affiliated with these organizations and does not endorse them.

We could not find a patient association specific to this disease.

For all rare diseases: Nadir Hastalıklar Federasyonu

Support and help

In an emergency in Türkiye, call 112.
For psychological and social support, the ALO 183 Social Support Line (24/7, free from within Türkiye): alo183.aile.gov.tr
For carers: Looking after yourself as a caregiver
Preparing for a doctor visit · Collect your questions and symptom notes on one page, then print it and take it with you.

Doktorclub does not diagnose, recommend treatments or refer you to hospitals or doctors. These pages are meant to help you talk with your doctor.

News about Bundgaard

TürkiyeResearch and clinical trialsAugust 7, 2026

Bundgaard syndrome diagnosed for the first time in Türkiye

In Diyarbakır, Bundgaard syndrome, an inherited heart rhythm disorder, was identified in a 41-year-old patient who sought care for dizziness and chest pain.

News reportBundgaard

Clinical trials (ClinicalTrials.gov)

A clinical trial is a regulated study that tests whether a new treatment is safe and whether it works, in patients who volunteer. Most trials look for a certain age, genetic change and health condition. Taking part is voluntary.

This list is not a treatment recommendation. Treatments tested in phase 1–3 trials are investigational (experimental): their efficacy and safety have not yet been proven and they are not approved treatments. Taking part depends on each trial’s criteria and a physician’s assessment; the first step is to talk to the doctor who manages your care.

ClinicalTrials.gov currently lists no active interventional studies for this disease. Last checked: October 7, 2026.

See all studies on ClinicalTrials.gov · Joining clinical trials

Heart and blood vessel diseases: other news

TürkiyeResearch and clinical trialsApril 10, 2026

12 children with Marfan syndrome in Ordu: half had widening at the root of the main artery

The heart findings of children with Marfan syndrome were studied at Ordu University.

Peer-reviewed publicationMarfan

TürkiyeResearch and clinical trialsAugust 1, 2025

Families of children with inherited heart rhythm disorders experience anxiety: a 53-patient study from Hacettepe

Hacettepe University measured anxiety in children with inherited rhythm disorders and in their families.

Peer-reviewed publicationLong QT syndrome

ThailandResearch and clinical trialsApril 26, 2025

Ablation reduced dangerous rhythm episodes in Brugada syndrome

In Thailand, a trial was carried out in patients with Brugada syndrome who had an implanted shock device (defibrillator).

Peer-reviewed publicationBrugada

Medical codes (for talking with your doctor and finding sources)

These codes identify the disease in international classifications and databases. They can help when you talk with your doctor or look for reliable sources.

International rare disease database: Orphanet

No matching ICD-11 entry was found.

Codes checked against WHO ICD-11 and Orphanet on October 6, 2026.

This page provides general information and does not replace diagnosis or treatment. Talk to your doctor about symptoms, diagnosis and treatment.