Every year on the last day of February
Rare Disease Day
Rare Disease Day takes place on the last day of February every year (29 February in leap years). Since 2008 it has been coordinated by EURORDIS and national patient alliances, with events in many countries.
Next: February 28, 2027 · 112 days to go. Each year’s theme and events are announced on the Rare Disease Day website.
What you can do
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Disease pages list patient and family organisations in Türkiye.
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Patient and family organisations
We checked each organisation’s official website. Doktorclub is not affiliated with these organisations.
Spinal muscular atrophy (SMA)
- SMA Benimle Yürü Derneği · İstanbul
- Türkiye SMA Vakfı · Eskişehir
Thalassemia
- Mevlana Talasemi Hastaları ve Aileleri Yardımlaşma Derneği · Konya
- Talasemi Federasyonu · run together with physicians
Hemophilia (A and B)
- Hemofili Dernekleri Federasyonu · run together with physicians
For all rare diseases: Nadir Hastalıklar Federasyonu
Links checked on October 8, 2026.
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You are not alone
Source: Rare Disease Day (EURORDIS) · EURORDIS – Rare Diseases Europe