EuropeResearch and clinical trials
271 patients with PCD followed in 7 countries: about 80% had at least one flare-up a year
A study published in a journal and reviewed by independent scientists. Even so, a single study is not conclusive; it needs to be replicated.
Patients with genetically confirmed primary ciliary dyskinesia from 11 centers in seven countries were followed for one year. The study, which included researchers from Türkiye, enrolled 271 people of all ages. About 80% of the 248 patients with complete records had at least one lung flare-up a year. The median number of flare-ups reported by the patients themselves was two per year. Flare-ups were more common in women and in the fall.
What does it mean for patients and families?
Flare-ups are very common in this disease; seeking care early when symptoms worsen is important. Being more careful in the fall months may help; the follow-up plan is made with the doctor.
Source
Scientific paper: Pulmonary exacerbations in patients with genetically confirmed PCD: a prospective observational multicentre study. Frontiers in Molecular Biosciences, 2026. DOI: 10.3389/fmolb.2026.1767533 · PubMed 42427487
The source page was opened and read on October 7, 2026. Summary prepared by the Doktorclub editorial team and translated from Turkish; it has not yet been reviewed by a physician (a scientific board is being set up).
This page is translated from the Turkish original.
Related disease: Primary ciliary dyskinesia (PCD)
This page reports a development; it is not a treatment recommendation. Your doctor decides whether a treatment is right for you.