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Survey on childhood Still's disease in Türkiye: no child was diagnosed at the first visit

Peer-reviewed publication

A study published in a journal and reviewed by independent scientists. Even so, a single study is not conclusive; it needs to be replicated.

Led by Istanbul University-Cerrahpaşa, a survey was conducted with families of children with Still's disease. In total, 39 children or their families took part in the survey. No child was diagnosed at the first visit, and one third first received a different diagnosis. Of the families, 90% had never heard of this disease until the moment of diagnosis. Of the 26 school-age children, 15 missed an average of 17.7 days of school a year because of the disease.

What does it mean for patients and families?

If prolonged fever, joint swelling and rash occur together, seeing a pediatric rheumatologist can speed up diagnosis. Families need more reliable information.

Source

PubMed (Pediatric Rheumatology Online Journal): Exploring pediatric onset Still's disease patient journey and parental perceptions in Türkiye through a survey.

Scientific paper: Exploring pediatric onset Still's disease patient journey and parental perceptions in Türkiye through a survey. Pediatric Rheumatology Online Journal, 2025. DOI: 10.1186/s12969-025-01155-7 · PubMed 41088359

The source page was opened and read on October 7, 2026. Summary prepared by the Doktorclub editorial team and translated from Turkish; it has not yet been reviewed by a physician (a scientific board is being set up).

This page is translated from the Turkish original.

This page reports a development; it is not a treatment recommendation. Your doctor decides whether a treatment is right for you.

The information on these pages is for general information only and does not replace medical advice. Talk to your doctor about diagnosis and treatment decisions. In an emergency in Türkiye, call 112.

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This page was translated from Turkish by the Doktorclub editorial team.